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| Date | Jun, Tue, 2013 |
| Location |  |
| Do You Have Chiari? | No |
| Message | I'm here trying to eduacate myself on Chiari Malformation as a very good friend of mine has it. She is beautiful inside and out and want to give her as much support as I can, so knowledge is power and I want to help....<3<3  |
| Date | May, Fri, 2013 |
| Location |  |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | neck and head pain |
| Message | I have Chiari type 1 but I recently experience a dull pain in my lower back region which is now radiating up through other parts of my body. I would love to know if anyone else has experienced this and like to know if it has anything to do with Syringomelia. I also have a shivering feeling. Many thanks  |
| Date | Mar, Sun, 2013 |
| Location |  |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | dizziness and balancing |
| Message | My name is olamide olaonipekun from nigeria in africa am 45yrs old i noticed this two yrs ago and i have been seeing a ns in nigeria what they told me was that my serebellar tonsile is 4mm i was still feeling the dizziness and atimes its like i wanted to fall down.I dont mind doing the surgery but i dont know how to go about it i have done mri for brain and for neck pls put me thru thank you for this website because non of my ns as ever told me that i have chiari malformation thank you |
| Date | Mar, Sat, 2013 |
| Location | |
| Do You Have Chiari? | Yes |
| If you have Chiari, what is your primary symptom? | Headaches and neck pain |
| Message | Hi I just found this site and am interesting in checking it out. |
| Date | Feb, Mon, 2013 |
| Location | |
| Do You Have Chiari? | Chiari and syringo |
| If you have Chiari, what is your primary symptom? | headaches and balance issues. |
| Message | Had decompression in 89' with a shunt put in at that time cause I had a large syrnix. Have some cord damage but manage to deal with life fairly well. More surgery due to cervical fusions (2) and sciolosis but holding my own with great family support. Found others in my area and now belong to a support group which unfortunately has too many. |
| Date | Feb, Mon, 2013 |
| Location | |
| Do You Have Chiari? | Chiari and syringo |
| If you have Chiari, what is your primary symptom? | headaches and balance issues. |
| Message | Had decompression in 89' with a shunt put in at that time cause I had a large syrnix. Have some cord damage but manage to deal with life fairly well. More surgery due to cervical fusions (2) and sciolosis but holding my own with great family support. |
| Date | Feb, Wed, 2013 |
| Location |  |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | type-I with sryngomylea |
| Message | Decompression done in july 2009. But things not changed, advised to undergo surgery again. Let me know me the best Hospital in India and abroad. |
| Date | Feb, Wed, 2013 |
| Location | |
| Do You Have Chiari? | yes, 6-8 mm |
| If you have Chiari, what is your primary symptom? | slurred speech, trouble swallowing, NO headaches? |
| Message | Would sure like to find "others" with my symptoms, as bulbar als or neurological lymes are my alternative diagnosis. Just find it too coincidental my cine MRI shows blockage and I had rough chiropractic adjustments around the same time frame, and, it was a fairly sudden onset. Many sites say slurred speech and trouble swallowing are symptoms, but I don't see others knocking on this door? |
| Date | Jan, Wed, 2013 |
| Location |  |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | dizzeness,high blood pressure, |
| Message | HI i am Italian 52, and i live in Brazil, i have this strange symptoms for more than 12 years and only now because i and not the doctors made the connection i discoverred a 5,1 tonsillar herniation. Here in Brazil we have no idea and no informations in sites or blog. I am considering to start a blog and traslate all the material and informations. It is possible?Can i? Thank you very much for this excelent site. Giancarlo Bibas |
| Date | Dec, Tue, 2012 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | headaches, neck and back pain, balance issues |
| Message | I was correctly diagnosed in November 2009 at age 48.My primary care physician was the one that finally diagnosed me with Chiari I Malformation and hydrocephalus after being told by a neurologist that I had no neurological problems.I have had 8 shunt surgeries in Augusta, GA (several were due to an infection in my brain)and one Chiari Decompression surgery at Emory in Atlanta,GA.All of these surgeries were performed beginning 11/2009 and the last one was the decompression surgery in 2/2011.I have great doctors and I am now dealing with all the other problems that come along with Chiari. |
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