CCI
Sign Guestbook   Back to Chiari Connection International

NameLinda Martin
DateAug, Sat, 2015
Locationclick picture for more information
Do You Have Chiari?No, my daughter
If you have Chiari, what is your primary symptom?Headaches
MessageMy daughter has Chiari Malformation 1. She is having surgery on Aug 11, 2015 at Chiari Institution in Great Neck, new York


NameAndrea Stewart
DateJul, Thu, 2015
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?severe headaches and spine pain
MessageChiari will not rule my life!


NameRese Hull
DateApr, Fri, 2015
Locationclick picture for more information
Do You Have Chiari?Yes
If you have Chiari, what is your primary symptom?Migraine
MessageHoping to find more support and help in locating knowledgeable doctors.


NameDeanna Hays
DateApr, Tue, 2015
Locationclick picture for more information
Do You Have Chiari?My teenage daughter has Chiari.
If you have Chiari, what is your primary symptom?Headache,back of head & eye pain,nausea
MessageI am looking for reviews of great neurologists and neurosurgeons for my teenage daughter. She was diagnosed with a severe case of Arnold Chiari 1 in early Oct 2014,and was decompressed,with removal of the dura, with replacement & also removal of C1 of her spine later that same month on Halloween. I would like to get a second opinion from another doctor, as she is still having many symptoms. We live in Oklahoma, however I took her to Chicago for her Decopresion surgery. Thank you in advance for your input & advice!! smilie


Namerita bonello
DateMar, Mon, 2015
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?headache,blurred vision,balance problems,sleepapne
Messagefighting for everyday better one keeping strong smilie


NameDebbie Smith
DateFeb, Tue, 2015
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?occipital pain
MessageI have a lot of other symptoms but so far I am told they are not related to the Chiari. Feeling misunderstood and ill


Namejoe bama
DateNov, Sun, 2014
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?headaches
MessageI had the decompression surgery 5/15/14. Ever since then. My life never been the same


NameSimon Agnes
DateNov, Thu, 2014
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?yes
Message69 year old male diagnosted with Chari over 8 years ago. Recently been experiencing severe insomnia, cold feet (but no fever), problems swallowing and excessive sweating for the last 3 months. Not sure what to do next.


NameChrisy Grinallo
DateNov, Sun, 2014
Locationclick picture for more information
Do You Have Chiari?yes
If you have Chiari, what is your primary symptom?i have allot
Messagegrammy sharron from the not any more whishes and rainbows told me about you and told me to contact you guys that you may be able to help me when i have to go to ny to see the doctor again so i am introdusing myself hi i am chrisy nice to meet you javascript:SetSmiley(' smilie 'smilie


NameJeannean Miller
DateApr, Tue, 2014
Locationclick picture for more information
Do You Have Chiari?No my 25yr old daughter does
If you have Chiari, what is your primary symptom?headache
MessageLooking for direction for improving my 25yr old daughters quality of life. We are 11 months post decompression surgery and the doctors we have seen in Oklahoma are not informed or willing to do any research to help. She finally has insurance and I am attempting to get her referred to a Chiari specialist. Any help or reccomendations are welcome.


Page 5 of 15 << First < 2 3 4 5 6 7 8 > Last >>