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Name	greg siples
Date	Aug, Sun, 2020
Location
Do You Have Chiari?	no
Message	My daughter, chiari diagnosed with a 1.5 ...not a 2 is having a second decompression surgery as the first one was unsuccessful. Is there a limit to how much tonsel removal in order to preserve cognitive functioning?

Name	Tamara
Date	Nov, Fri, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Pain
Message	O

Name	Wendy Palmer
Date	Nov, Fri, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Headaches
Message	To all my fellow warriors.....keep up the fight, we can beat this!

Name	Amie Green
Date	Aug, Tue, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Headaches
Message	I have had increased symptoms that I can no longer hide from my family. The last few weeks have caused a person who used to just handle stuff, lose all hope. As mother of 3, that is not acceptable. I stumbled upon ya'll just now by googling, because I honestly don't know what else to do. I've lost all hope, and feel worthless. I've been "questioned" about whether I am a drunk, crazy, and a few others. My loved ones, I can see the concern and worry in their faces. I am scared for my kids, for my family, for my financial wellbeing, and for their future. Thank you God I stumbled upon this website tonight.

Name	Angie Saunders
Date	Jun, Fri, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	my body is failing
Message	Hello. Im really not sure what to say here. Chiari is kicking my butt. My body is failing. I am losing my ability to do things for myself. I can hardly work anymore. And where I live there are not specialty doctors here that treat the symptoms. I hope you all have the best day possible for you.

Name	Lisa Smith
Date	Apr, Mon, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Headache, Neck pain. Just don't feel well
Message	I have been searching for a very long time for a place for someone like me. I live with pain every day. I found out that I have Chiari 15 years ago or more. At that time there were very few doctors that knew how to treat Chiari. And even now I keep searching for some kind of relief.

Name	Lisa Smith
Date	Apr, Mon, 2019
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Headache, Neck pain. Just don't feel well
Message	I have been searching for a very long time for a place for someone like me. I live with pain every day. I found out that I have Chiari 15 years ago or more. At that time there were very few doctors that knew how to treat Chiari. And even now I keep searching for some kind of relief.

Name	Connie
Date	Oct, Mon, 2018
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Nerve damage pain
Message	I was diagnosed with type 1 in 2014. I live in Texas. I was numb and couldn't continue my work. I was scared and pregnant. UTMB found chiari and suggested I have surgery to keep the numbness from spreading. I've never gotten an better I've been fighting social security disability for 4 years . I just try to survive every day until my children grow up and move away.

Name	Sara McFarland
Date	Aug, Sat, 2018
Location
Do You Have Chiari?	No
Message	My 19 year old son has just been diagnosed with Chiari after suffering a new onset grand mal seizure. Still in shock stage and with no insurance I am very worried.

Name	Stephanie Montgomery
Date	Mar, Mon, 2018
Location
Do You Have Chiari?	Yes
If you have Chiari, what is your primary symptom?	Pain
Message	I had a depression surgery that has helped headaches but I now been diagnosed fibromyalgia post surgical. I wonder what of my symptoms are for which diagnosis?

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