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Sign Guestbook Back to My life with Syringomyelia aka: SM Report abuse
| Date | 2013-01-06 |
| Location |  |
| Message | Janice, I am a 69yr.old woman with am. Diagnosed in 2007 had unsuccessful shunt with double laminectomy. Typing is too hard. My prognosis is quadraplegia due to location of syrinx. I do no have voice recognition program yet. Do u Skype? I have new kindle,not yet cconfigured for Skype till my son comes later this month. Please reply if able,need a friend. Danya Patton danyap@aol.com |
| Date | 2012-12-04 |
| Location |  |
| Message | Hey! I'm an 18 year old student from Sussex in the UK and I have been suffering from SM all my life and only just got diagnosed -- about three months ago. Throughout my life my symptoms have gradually appeared, causing me horrible nerve pain and I've been suffering from paralysis in my LH side for nearly two years now. And now I have to have the surgery - it's fair to say that I'm 'cacking' myself! My biggest struggle is having to reassure people that i'm not 'faking' my symptoms and that they are REAL. SM is such a horrible condition to have, but reading blogs like yours, has proven a sort of comfort - knowing that I'm not alone and that there are people who understand... having a condition like this, only makes us stronger. Thankyou for writing this. X  |
| Date | 2012-10-17 |
| Location | |
| Message | I also have syringomyelia. I am so happy to know I am not alone! Thank you... |
Private Message added 2012-04-16 |
| Date | 2012-03-02 |
| Location | |
| Message | I was diagnosed with SM in May 2011, had surgery in June to release a tethered cord and had a shunt placed in the syrnix...my neurosurgeon was emphatic that these measures were to prevent further damage..I had difficulty sitting before the surgery,...no problem now. Had my knees replaced Oct/Dec respectively and naively thought I would be a ready to conquer the world,,,WRONG..,,I'm just starting to deal with the permanent damage and depression,.,,.UGH,.,,and pain when I do too much which is really not much at all...side note.,I'm a Chicago native..class of 1971.... God bless you,,,,,  |
| Date | 2011-11-02 |
| Location | |
| Be sure to sign my guestbook on the way out!! | www.befreckledwithlove.blogspot.com |
| Message | Hello! I don't know a lot about your illness...however, I understand pain and depression, as I have severe RLS and Fibromialgia...as well as BPD (altho thankfully this is not as severe). I just started a blog and also trying to market my artwork. We will see how this goes!  Take care now, Jenny |
| Date | 2011-09-03 |
| Location |  |
| Be sure to sign my guestbook on the way out!! | Live for your life |
| Message | I am a Male age 47, living with syringomyelia for the past 6 years and just keeping my fingers crossed that how long I can hold on. I pray each day that I shall live to see tomorrow. Keep it up and live for your life. God Bless You. |
| Date | 2011-08-12 |
| Location | |
| Be sure to sign my guestbook on the way out!! | Gerald Jones |
| Message | I know what you are dealing with I have been dealing with syringomyelia since May 1985 and I can not take much more |
| Date | 2011-06-09 |
| Be sure to sign my guestbook on the way out!! | DD |
| Message | Very interesting blog |
| Date | 2011-03-07 |
| Be sure to sign my guestbook on the way out!! | Madeline |
| Message | Thank you for sharing your incredible journey and strength! I will pray for you too ! Regards, Madeline |
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