Sign Guestbook Back to Chiari Connection International
| Date | Oct, Thu, 2010 |
| Location |  |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | Pain, numbness, thick skulled in-laws, uninformed |
| Message | First time I visited this site. This is also first time I ever signed an online guestbook. I've been looking for support to get a one handed keyboard due to the fact that is all I can type with anyway forever now it seems, but I still think a specific one handed keyboard would really help. All Chiari related. Any way Hi to whoever reads this. |
| Date | Oct, Mon, 2010 |
| Location | |
| Do You Have Chiari? | CM1 |
| If you have Chiari, what is your primary symptom? | H/A, numbness, virtigo, balance |
| Message | Diagnosed in 8/10 with 10mm herniation. Radiologist reported incidental mild ACM1, because there was no brain tumor. Symptoms have been troublesome for 10+ years and debilitating progressively since 6/09. Diagnosed with Scoliosis at 17 & told it would never progress. Latest MRI shows severe progression and needs to be stabilized with fusion. CM & Scoliosis are possible linked. I also have Degenerative Disc Disease, Kyphosis, spondylosis, no lordosis in the cervical cavity and the list continues. I have tried injection therapy no relief. I'm scheduled to see the Neurosurgeon on 11-1. I would love to meet anyone that has Chiari and lives in Washington state, specifically Seattle or Tacoma. I'm tired of Chiari running my life and I'm going to put up a fight until the very end. |
| Date | Oct, Sun, 2010 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | headaches, all over wknss n pain, memory loss |
| Message | I have been dealing with constant headaches for years hoping to find a different solution to the problem besides surgery. As of now I have given up on hope for a pill and am getting the surgery on novermber 18th. Hopefully it will help, I also have degenerative disc disease and was told I would eventually need four discs fused. I am petrified, ready to take the bridge, it might hurt less.  |
| Date | Oct, Mon, 2010 |
| Location | |
| Do You Have Chiari? | yes Chiari 1 |
| If you have Chiari, what is your primary symptom? | headaches, lower back hurts, ear pulsing |
| Message | found i have chiari in 2007 only because i have pulsing sounds in my right ear. headaches i thoght it was from my sleeping disorders wrong it was from my chiari |
| Date | Oct, Mon, 2010 |
| Location | |
| Do You Have Chiari? | No |
| Message | I am here because I have a very dear friend who suffers from chiari. and I want to support her and educate others on this subject. Thank you for providing all this important information. |
| Date | Oct, Fri, 2010 |
| Location | |
| Message | You made some good points there. I did a search about the topic and hardly found any specific details on other sites, but then great to be here, seriously, appreciate that. Lucas |
| Date | Sep, Mon, 2010 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | Headaches |
| Message | Hi, im from az and I have chiari and SM. I am 43 and was diagnosed in 2009. Im really scared to have this and I have no friends here that have Chiari. or understand what im going through...... Please help me find friends here in az that have this condition. Please send them my way thanks. Janine Irish |
| Date | Sep, Mon, 2010 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | Headaches |
| Message | Hi, im from az and I have chiari and SM. I am 43 and was diagnosed in 2009. Im really scared to have this and I have no friends here that have Chiari. or understand what im going through...... Please help me find friends here in az that have this condition. Please send them my way thanks. Janine Irish |
| Date | Aug, Thu, 2010 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | basilar invagination/EDS/platabasia |
| Message |  after 4 years of misdiagnosis, you're a woman, it's stress, it's menopause, buy a new pillow that was a good one.I had an odontoidectomy,diskectomy, 0-C4 fusion in 2002 I too had the zipperhead.I was left with approx 3 degrees rom. 2 1/2 years I started having the same symptoms. My hardware from 4 level fusion blew out C4/5 C5/6 6/7. I then had anterior diskectomy and now have a plate behind the esophagus. Until i found this group I didn't know there were others that had gone thru the same thing. It's nice to know I'm not alone |
| Date | Aug, Fri, 2010 |
| Location | |
| Do You Have Chiari? | yes |
| If you have Chiari, what is your primary symptom? | Pain |
| Message | Surgery saved my life, but four years later I'm still living with pain, fatigue, muscle tension and spasms, weakness, balance issues, and other problems. It took several years before I was correctly diagnosed, and most of the time I was told it was just "stress" and I needed to calm down. This disorder needs more attention and research to prevent more suffering and misdiagnoses. |
Page 14 of 15 << First < 11 12 13 14 15 >