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NameCheryl Haws
Date2007-11-06
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MessageHi there, I happened upon your site while checking out a tip from a fellow med student who said that it may be possible to qualify for Medicaid ( or Medi-Cal here in California )because she says she qualifies due to her "genetic" disorder. Right now I am a nursing student in the Bay Area, and quit my job to go to school, thereby forefeiting my health insurance. I did tons of research on IgA Deficiency ( I am completely IgA negative ), did a report, gave a speech, so it's nice to know that someone out there (you) are taking it public and educating us out here. I'm new here, but it looks like like there is a lot to check out. My friend said it's hard to find out about qualifying for Medi-Cal with this disorder, she says it took tons of research, wondered if you or anyone else have heard of this for those of us who are uninsured but make ti much to qualify otherwise.


NameSandra
Date2007-02-16
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Messagesmilie Hi! I'm interested to know what kind of diet you have. I have so many problems with my stomach and have pernicious anemia as well as IgA deficiency. I'm sick a lot and have allergies. I have so few foods I can eat! WHY? What does this do to one's stomach? My doctors are not very forthcoming with answers and I am extremely frustrated with this all! Help smilie please! Thanks a lot.
Hugs
Sandra


Nameaaa
Date2006-11-08
MessageIt's easy to set goals for yourself. Yet they are meaningless if you don't really believe you can achieve them. So when you set a goal, think of all the actions you can take to achieve that goal. Better yet, write them down. The more you can come up with, the better. When you start to consider the real details of achieving your goal, the goal itself becomes more real and reachable. Developing a list of specific actions, will enable you to see yourself doing it. As you begin to actually take those actions, your goal becomes more and more real to you. Once you believe you can, you can. And that belief comes from a clear, specific set of actions that you can see yourself taking. Set your goal. In your mind, build a road to that goal. Then start walking down that road of success.


NameAyelet
Date2006-08-31
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MessageHi! i'm researching IgA deficiency, and i'm interested in finding out information about the diet of people affected by this disease. If you feel like sharing your menu with me, and are positive for anti-IgA antibodies, feel free to contact me about it.

Maybe it will lead to a cure!
Cheers,
Ayelet
avniay@umdnj.edu


NameWOW!! (nedra) Lol!
Date2006-06-11
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MessageYou smilie really helped me I can tell you! I was so happy to find this site I cried! I am just beginning to learn about this illness and it was so cool to find this information and know that Im not alone in this. We should all form a group and learn from each other! Best wishes and I WILL be popping back here! Hugs!Nedra smilie


NameCarmen Dennis
Date2006-05-06
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MessageThis is like a relief to see coz I thot i was alone in this. im not glad other peeps got it but it nice to not feel so alone with. im looking for a msg board or some forum place to chat with other peeps wit this do you know of any? smilie smilie Thanks for all the info here!
Hang smilie in there everyone!
((((((((((((HUGS TO YOU ALL smilie ))))))))))))


NameRosaria Blaunicinski
Date2006-04-23
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MessageHello my brother have this disease. Are there any cures in America? He sterile now too. Does this cause sterilety? Thank you for information.Good luck too you.
Rosaria


NameEllie
Date2006-04-17
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Messagesmilie HAPPY HOLIDAYS!


NameTara
Date2006-04-05
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Messagesmilie smilie Thank you! This disease sucks, it's nice to not feel so alone with it!!


NameCharisse
Date2006-03-24
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Messagesmilie smilie Thank you so much for this information! I was delighted to find it! There are so many excellent links you have found to other sources of help! Good luck to you!
I have iga deficiency and p.i.d. with p.a. and h.a. Am being checked for possible RA and celiac too. Hugs! smilie


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