Leave Your Messages Here!
Sign Guestbook Back to A ClusterHead's Life
| Date | 2012-04-27 |
| Location |  |
| Message | Hi, Well its nice to see that Im not as much of a freak of nature as I thought! I too suffer from Cluster headaches and as my neurologist was deciding on how to treat me discovered my simple partial and complex partial seizures. He then gave me a prognosis of Epilepsy and said that he had to observe me longer in order to give a definitive diagnosis. So far the Clusters come on every time the seasons change, so everyone at work thinks Im just making things up and now that my seizures are pretty much under control they think that was all in my imagination. It has been rough and being military has made it worse. Im glad I found your blog. It made me feel better about these two diseases and also made me feel like I wasnt loosing my mind. Thanks  |
| Date | 2012-01-17 |
| Location |  |
| Message | Hello, Was reading your blog. So incredibly sorry you have to live with this condition. I have been researching it. I just wanted to tell you I wanted a really great documentary on National Geograpic and they did a segment on a man who has cluster headaches, and he found relief by doing mushrooms(the magic kind) once every 2 months, and it gave him complete relief for the 2 months. I really hope things get better for you. Cant imagine having to live with Cluster headaches. Best of luck. |
| Date | 2011-09-03 |
| Message | I recently became aware of the severity and frequency of migraine sufferers when seeing info on it on shows like cbs news and The Journal with Joan Lunden, and then it hit home with a close friend. Keep up the fight and posting the info. |
| Date | 2011-07-13 |
| Message | The 2nd video was me before my doctor gave me Imitrex injections. I don't go anywhere without them and I highly suggest them for anyone who suffers from this debilitating condition! The headache goes away within 7 minutes. |
| Date | 2009-12-15 |
| Location |  |
| Message | Hi Im Scott, I have been a cronic cluster head for over 3 years. My Nuroligest had me on 7 diferent pills a day,o2 and injections. and still had attacks every day. I started Acupunture a year ago, and after 6 weeks they went away  I went back to the States a few months later,and didnt keep up going for treatment after 2 months they came back. only 2 treatments and there gone again. I can again eat and drink everything that used to be my trigers. My O2 tank has dust on it and my DHE is about to expire. The cluster headachs did get me my SSI disability though, and let me retire a few years early  I hope this will help someone els. |
| Date | 2009-10-13 |
| Location |  |
| Message | Hi Paul, Just wanted to say you´re not alone. It´s 5.30am here and I have just been awoken by ¨the pain¨ for the second time tonight. Am currently enjoying the euphoria of it abating - but apprehensive of the paranoia that it will return. What an extreme cycle we live in! Stay strong. Alastair |
| Date | 2009-09-01 |
| Location | |
| Message | HI, thank you for coming to my wedding. Looked like you had fun. Did You enjoy yourself? Mike |
Private Message added 2009-08-19 |
| Date | 2009-06-08 |
| Location | |
| Message | I was glad to see this web site.I also suffer from extreme cronic headaches.In the last 9 years I have only gone a period of 3 and a half months of no attacks.I rarely get one month out of a year of relief.The videos I saw on this site showed me that there really are others out there with this horrifying condition.I think it is wrong that the suffers of this condition dont have accses to the medication needed to ease the pain.Due to lack of insurance.And even with insurance,coverage is minimal.I am seriosly considering starting some type of orgaization that will build such a hugh amount of money that will be able to help people with this condition.My condition has gotten to the point were my whole life revolves around the pain in my head.Therefore maybe its time to devote my time to people like me.I would like to see some kind of organization be set up that helps those with the monetary needs of alot of these suffers.Beleive me,my heart goes out to all with this condition. Sincerely Mark Bickel.  |
| Date | 2009-05-27 |
| Location | |
| Message | Hello to All, I have suffered from cluster headaches for 21 years and finally I received an appropriate diagnosis yesterday from my nurse practitioner. I have been an RN for 10 years. I have been to my PCP, neurologist, allergist, and no one was ever capable of treating my symptoms, which included excruciating pain weekly. I have a history of chronic, continuous cluster headaches. I have taken many antibiotics, allergy nasal sprays, and anti-histimine for years with no success of relief. I have had a CT scan of my sinuses that came back normal along with allergy scratch tests that showed positive for "mold." I have tried every OTC pain reliever and allergy medication. I have lived with eye pain so severe that I have had sore spots and bruising around the bridge of my nose from holding pressure to try and relieve the pain. I have been to the ER for nausea and vomiting only to be told that I was dehydrated and probably had gastritis. Chronic pain is real and only gets worse when you are not diagnosed appropriately. How did I finally get the help I needed? I was finishing my shift at the hospital and vomited in a patient's bathroom. Saw the NP, my PCP was out. She took one look at my face and drooping, glassy eye and came back with Zomig. I took one at he office and one at home. By the end of the night, I was feeling less eye and head pain. I am doing a lot of research hoping for a better life! |
Page 36 of 39 << First < 33 34 35 36 37 38 39 >