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| Date | 2013-03-10 |
| Location |  |
| Message | I too suffer from Cluster Headaches. I recently (last week) under went 18 infusion treatments of DHE to try and make my headache easier to live with. |
| Date | 2012-05-26 |
| Location |  |
| Message | Hi there is nothing worse than having to live with clusters and you can get all caught up in it all and forget that anything else exists, that was a great read and i hope you do one day start to write your blog again Thanks Colin (a fellow cluster headache sufferer)  ← me when I have a headache lol |
| Date | 2012-04-27 |
| Location | |
| Message | Hi, Well its nice to see that Im not as much of a freak of nature as I thought! I too suffer from Cluster headaches and as my neurologist was deciding on how to treat me discovered my simple partial and complex partial seizures. He then gave me a prognosis of Epilepsy and said that he had to observe me longer in order to give a definitive diagnosis. So far the Clusters come on every time the seasons change, so everyone at work thinks Im just making things up and now that my seizures are pretty much under control they think that was all in my imagination. It has been rough and being military has made it worse. Im glad I found your blog. It made me feel better about these two diseases and also made me feel like I wasnt loosing my mind. Thanks  |
| Date | 2012-01-17 |
| Location |  |
| Message | Hello, Was reading your blog. So incredibly sorry you have to live with this condition. I have been researching it. I just wanted to tell you I wanted a really great documentary on National Geograpic and they did a segment on a man who has cluster headaches, and he found relief by doing mushrooms(the magic kind) once every 2 months, and it gave him complete relief for the 2 months. I really hope things get better for you. Cant imagine having to live with Cluster headaches. Best of luck. |
| Date | 2011-09-03 |
| Message | I recently became aware of the severity and frequency of migraine sufferers when seeing info on it on shows like cbs news and The Journal with Joan Lunden, and then it hit home with a close friend. Keep up the fight and posting the info. |
| Date | 2011-07-13 |
| Message | The 2nd video was me before my doctor gave me Imitrex injections. I don't go anywhere without them and I highly suggest them for anyone who suffers from this debilitating condition! The headache goes away within 7 minutes. |
| Date | 2009-12-15 |
| Location |  |
| Message | Hi Im Scott, I have been a cronic cluster head for over 3 years. My Nuroligest had me on 7 diferent pills a day,o2 and injections. and still had attacks every day. I started Acupunture a year ago, and after 6 weeks they went away  I went back to the States a few months later,and didnt keep up going for treatment after 2 months they came back. only 2 treatments and there gone again. I can again eat and drink everything that used to be my trigers. My O2 tank has dust on it and my DHE is about to expire. The cluster headachs did get me my SSI disability though, and let me retire a few years early  I hope this will help someone els. |
| Date | 2009-10-13 |
| Location |  |
| Message | Hi Paul, Just wanted to say you´re not alone. It´s 5.30am here and I have just been awoken by ¨the pain¨ for the second time tonight. Am currently enjoying the euphoria of it abating - but apprehensive of the paranoia that it will return. What an extreme cycle we live in! Stay strong. Alastair |
| Date | 2009-09-01 |
| Location | |
| Message | HI, thank you for coming to my wedding. Looked like you had fun. Did You enjoy yourself? Mike |
Private Message added 2009-08-19 |
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