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Private Message added 2013-02-13 |
| Date | 2011-08-18 |
| Location |  |
| Message | Hola: Soy Isabel, la mama de Elena, una niña de 15 meses diagnosticada desde hace 3 de síndrome de Hurler. Estamos a la espera de un trasplante de cordon umbilical, se lo hacen en septiembre. Visitamos muy a menudo vuestro blog, para ver los progresos de Gracie, está preciosa! Muchos besos |
| Date | 2011-04-13 |
| Location |  |
| Message | You have been on my mind lately. I just thought I popped in and say hello. |
| Date | 2011-01-23 |
| Location | |
| Message | Stop hack the program!!! |
| Date | 2010-12-23 |
| Location | |
| Message | Stop hack the program!!! |
| Date | 2010-10-03 |
| Location | |
| Message | Unknown message |
| Date | 2010-04-28 |
| Location | |
| Message | Such good reports on Gracie!! I check in every now and then and keep Gracie on my prayer list. Glad things are progressing well! |
| Date | 2010-04-20 |
| Location | |
| Message | Hello to all. My name is Mary and I live in California and have just read your posts. I have an 11 month old granddaughter who was diagnosed with Hurlers in January of 2010. She was admitted to UCSF yesteday, 4/19 and began her chemotherapy today. I just wanted to thank you, on behalf of parents and families like ours, for taking the time to write that letter. Without the cord blood bank... well I don't want to think of that. My thoughts and prayers are with Gracie that she thrives and lives a long happy and healthy life. God bless you and your family. |
| Date | 2010-03-09 |
| Message | Hi Gracie, I am Torie Bradie's 'Papa Tom'(grandpa, married to Cheryl). Thank you for this opportunity to follow your site. It helps us sort of look into the future to see where Torie may be some day. I hope all is well with you and your family! Torie's Papa Tom |
| Date | 2010-03-09 |
| Message | Hi Gracie, I am Torie Bradie's 'Papa Tom'(grandpa, married to Cheryl). Thank you for this opportunity to follow your site. It helps us sort of look into the future to see where Torie may be some day. I hope all is well with you and your family! Torie's Papa Tom |
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