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This site is maintained by Priscilla Song and Joseph Walline on a volunteer basis.
Sign Guestbook Back to OEC Patient Support Website
| Date | 2006-03-10 |
| Location |  |
| Message | Priscilla and Joe, Congratulations with your site which gives a lot of information on the OEC-treatment of dr.Huang, positive and negative... Our brother-in-law Joop was in China for the EOC-treatment in February 2005. After the surgery he gained some (small) improvements that made daily life a lot easier. In August 2005 he went to China again for 1 week of medical research and early December 2005 he had the OEC-surgery for the second time. Unfortunately he was already in a very bad condition upon arrival in China in November. The very good medical care he was given in China gave him enough energy to make it possible for him and his family to celebrate X-mas together in Holland. In January 2006 his condition became worse and he died on January 16. We can imagine that ALS-patients search for all the information they can get on treatments everywhere. Therefore we want to share Joop's diary with others. His website does not tell you to go or not to go to China for the OEC-treatment. Everyone makes his own choice. Joop's diary(in Dutch)is telling about Joop's struggle against ALS as from the moment he choose for the OEC-treatment in China untill his passing away: http://communities.zeelandnet.nl/data/joop_luitwieler/index.php?page=1 Regards, Henk and Diana |
Private Message added 2006-02-20 |
| Date | 2006-01-18 |
| Location |  |
| Message | Just a note to say hello. Are you still available to help with a visit to China. |
| Date | 2005-10-19 |
| Location | |
| Message | Hi---I am Jim Trikey's Mother. He and his younger brother will be arriving in China for Jim's follow-up visit next week. I hope you will all meet. Many thanks for your volunteer efforts and putting this web-site up for all of us. You are doing a great service!!!!!! |
| Date | 2005-10-18 |
| Location | |
| Message | Just found your site. Great info!! OEC May 05' Follow up trip Oct.25 05' Pals 01'  |
| Date | 2005-10-04 |
| Location |  |
| Message |  Where did the time go - we hardly got to spend any time together and I never did help you with your website.  Perhaps I will return - who knows.  Thanks for everything and keep up your good work.  |
| Date | 2005-09-10 |
| Location | |
| Message | Nifty! Hey, get some patients to sign releases so you can put cool surgery photos on the website!  |
| Date | 2005-08-24 |
| Location |  |
| Message | 你的事业成功！  |
| Date | 2005-08-17 |
| Location | |
| Message | Dear Priscilla and Joe, Great work! I am very appreciative of your research... Looking forward to seeing you next month. All the best, Xiangshu |
| Date | 2005-08-03 |
| Location | |
| Message | Had OEC surgery May 2005. Live in Fairfield TX and welcome any PALS who wish info or my take on the procedure or treatment in Beijing. Joe and Priscilla have been a great help to us all! |
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