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The MSRC
Name | amanda alexander |
Date | 2012-02-27 |
Location | |
Message | I just wanted your posters and bloggers that i have stayed with tysabri for 5 years now. i have had ms since 94, 18 years? wow. that was fast!! I was d/x in 1994, and received only prednisone that year, (thru fall 1994 to spring 95). i started betaseron during my second flarup in spring 95, took it for 8 years later when i 'ran out of skin to inject'. i discontinued it on my own, as i started to have an aversion to needles, and was having injection site issues, in late 2004 to early 2005. Started Avonex in fall 2005, stopped it fall 2006. I don't think it did me much good after having 2 excaserbations that year, which meant i started tysabri while having a knock down drag out, flareup, which was cleared in 2 weeks after my first tysabri infusion. i started tysabri in feb 2007, 5 years, 65 (yes, sixty five )infusions ago. i do not have the jvc 'gene'. number 66 is this week. I've seen posts where some say tys is only for 2 years, but here i am, 5 years later, exaserbation free. i am hoping this info will help ease the fear surrounding Tysabri. I have barely any side effects now and judging from flareups, tyasabri 5years +, zero flareups, betaseron 8 yrs, occasional flareups, mildler than before i started, avonex, 1 year, 2 knockdown dragout flares. if you have something specific you are worried about,please email, maybe we share symptoms or timeline or side effects. From rural Canada, amanda |