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Sign Guestbook Back to My life with Syringomyelia aka: SM
| Date | 2013-04-18 |
| Location |  |
| Message | Last three weeks ago i lost my job and i started seeking for another good job and i have been to many interview but i was not giving a job so one day i saw a testimony on the internet on how Ekaka help someone to get a good job so i have to contact him on his email: [email protected] and he told me what i need to do and after 2days all the place i have attended interview they all started calling me and i was confuse because i do not know the right one so i have to call Dr. Ekaka again to know the right place i need to work so he told me how i am going to know the right one which i did and now i am the happiest person on earth. |
| Date | 2013-03-28 |
| Location | |
| Be sure to sign my guestbook on the way out!! | Gob Bless |
| Message | I understand how you feel I was a police officer in may 01 and after a 16 year old got thru with me I was a cripple. I am a Christian and that is the only thing that keeps me from killing mysely. I wish so much for the back to the future car just to live with a job and no pain. After oxycontin i got on methadone it works some but headaches are. good luck B |
| Date | 2013-03-01 |
| Location | |
| Message | Have been reading your post and must say that I am impressed with your will. I was diagnosed with a small syrnx in my spine about 10 years ago..and tho, it was suggested to me at that time by Neurologist at the University of Alabama Hospital, to have a "shunt" put in...I chose not to have the procedure done. Presently, I have a lot of symptons including mylepathy. Losing use of pinkie and ring fingers on both hands..speech problems...numbness in legs and feet. Memory problems...and mobility issues. Latest MRI showed Syringomyelea with Mylepathy. My appt. with Dr. Naguzewski (Neurosurgeon @ Gordon Hospital, is on March 20th. I am very nervous..scared and have a lot of questions. Very nice to actually be able to converse with someone who is experiencing some of the same issues. Hope you get some relief with your pain.  |
| Date | 2013-01-06 |
| Location | |
| Message | Janice, I am a 69yr.old woman with am. Diagnosed in 2007 had unsuccessful shunt with double laminectomy. Typing is too hard. My prognosis is quadraplegia due to location of syrinx. I do no have voice recognition program yet. Do u Skype? I have new kindle,not yet cconfigured for Skype till my son comes later this month. Please reply if able,need a friend. Danya Patton [email protected] |
| Date | 2012-12-04 |
| Location |  |
| Message | Hey! I'm an 18 year old student from Sussex in the UK and I have been suffering from SM all my life and only just got diagnosed -- about three months ago. Throughout my life my symptoms have gradually appeared, causing me horrible nerve pain and I've been suffering from paralysis in my LH side for nearly two years now. And now I have to have the surgery - it's fair to say that I'm 'cacking' myself! My biggest struggle is having to reassure people that i'm not 'faking' my symptoms and that they are REAL. SM is such a horrible condition to have, but reading blogs like yours, has proven a sort of comfort - knowing that I'm not alone and that there are people who understand... having a condition like this, only makes us stronger. Thankyou for writing this. X  |
| Date | 2012-10-17 |
| Location | |
| Message | I also have syringomyelia. I am so happy to know I am not alone! Thank you... |
Private Message added 2012-04-16 |
| Date | 2012-03-02 |
| Location | |
| Message | I was diagnosed with SM in May 2011, had surgery in June to release a tethered cord and had a shunt placed in the syrnix...my neurosurgeon was emphatic that these measures were to prevent further damage..I had difficulty sitting before the surgery,...no problem now. Had my knees replaced Oct/Dec respectively and naively thought I would be a ready to conquer the world,,,WRONG..,,I'm just starting to deal with the permanent damage and depression,.,,.UGH,.,,and pain when I do too much which is really not much at all...side note.,I'm a Chicago native..class of 1971.... God bless you,,,,,  |
| Date | 2011-11-02 |
| Location | |
| Be sure to sign my guestbook on the way out!! | www.befreckledwithlove.blogspot.com |
| Message | Hello! I don't know a lot about your illness...however, I understand pain and depression, as I have severe RLS and Fibromialgia...as well as BPD (altho thankfully this is not as severe). I just started a blog and also trying to market my artwork. We will see how this goes!  Take care now, Jenny |
| Date | 2011-09-03 |
| Location |  |
| Be sure to sign my guestbook on the way out!! | Live for your life |
| Message | I am a Male age 47, living with syringomyelia for the past 6 years and just keeping my fingers crossed that how long I can hold on. I pray each day that I shall live to see tomorrow. Keep it up and live for your life. God Bless You. |
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