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| Date | 2008-02-11 |
| Location |  |
| Message | Just wanted to add that I live in Jacksonville, Florida. and have been going to the UofM since 1998 with 2 Hurler kids... |
| Date | 2008-02-11 |
| Location | |
| Message | My daughter had her BMT at the UofM when she was 7 months old. I opted out and did'nt want the ERT. I wanted the BMT because that is what will save her brain. She is 4 yrs. post BMT and ding awesome.I have 2 kids with Hurlers. Their is alot of decision making and my was to have the BMT and not have ERT. Our outcome has been great. |
| Date | 2008-02-11 |
| Location | |
| Message | I love how you are all coming together and supporting each other. In all of this seriousness you have found warmth (despite the temperatures,)humor, and continue to educate the rest of us in so many ways. I feel like I should be doing something...flying to FL to rally the community you live in, holding bake sales or SOMETHING to help ease the expenses. Please know that so many of us are reading and following your journey and ALWAYS thinking of you and praying for continued HOPE. Please PLEASE please know that if there is anything you need and I can do it, I am there for all of you. |
| Date | 2008-02-11 |
| Location | |
| Message | Hi to Sarah, Jimmy & Gracie! You are all in my thoughts and prayers daily. I'm here reading every day & have so much hope for Gracie. I really feel in my heart that she is going to be just fine! Much love from Amber, Gale & Madison.  |
| Date | 2008-02-10 |
| Location | |
| Message | Dear Jimmy, Sarah, Gracie & Mack, You guys are all doing a great job. We're so proud of you for the research and acting on it so quickly. You are in our thoughts and prayers every waking moment. Just remember "when you don't see 2 sets of footprints in the sand, it's because at that time you are being carried by HIM". He is with you in this all the way, and so is everyone you know. You will never know how much you are loved by everyone you meet. I'm so excited about this blog and how fast you keep us informed. Thanks. Love ya, Me-Ma & Pa-Pa |
| Date | 2008-02-10 |
| Location | |
| Message | Just sending thoughts, prayers, and loves to you all. Keep going Gracie, we are all here for you and pullin! |
| Date | 2008-02-10 |
| Location | |
| Message | Just sending thoughts, prayers, and loves to you all. Keep going Gracie, we are all here for you and pullin! |
| Date | 2008-02-10 |
| Location | |
| Message | Dear sarah,jimmy,mack,chris,mandy&kent, this sweet little person "Gracie"has helped to and hopefully will continue to help to pull our family together in a way that not much else could. what a joy it is to your mother and i to see the love and charity being displayed by you all.our hearts, though breaking for Gracie,are swelled with pride for each of you.thank you for being the caring people that you are.as a group, our family is really smart, so i'm confident that the best possible decisions will be made on gracie's behalf.also we are praying for the Lord's guidance and i think that i can see his hands working thru each of you. love,mom&dad |
| Date | 2008-02-10 |
| Location | |
| Message | I'll be thinking of you guys next week and sending positive and good thoughts your way...it sounds like the doctors you are meeting with have great bed-side manners, which I imagine will make this process a little bit easier. Give lil Gracie a kiss-n-hug good night from me...try to enjoy the rest of your weekend in the tundra! |
| Date | 2008-02-10 |
| Location | |
| Message | We've been checking the blog daily. Charlie Bean, Scuba Steve, and I are sending you all of our pixie dust. Stay warm, and hug each other often! xoxox  |
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