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| Date | 2013-06-20 |
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| Message | I come here whenver I feel depressed and need encouragement. Would LOVE to see any updates since 2008... Best, Lucy |
| Date | 2010-08-12 |
| Message | Thank you for your success story, so nice to read. My daughter has just turned 1 and was diagnosed with IS at 4 months....thank you for your encouragement  |
| Date | 2009-02-14 |
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| Message | My daughter Julia was doagnosed with IS almost a year ago. We have seen some success with Vigabatin and along with it came the development. However the seizures are back and the skills gained are slowly going away. |
| Date | 2008-01-21 |
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| Message | My 4 month old grandson Jaiden was just diagnosed this week. We're still numb but want to thank you for your success story. It is encouraging. |
| Date | 2007-09-07 |
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| Message | Thanks for sharing your story, its is great to hear stories with good outcomes. My son just turned 1 yrs old in May of this year and he has had infantile spasms since he was 4 months old they started the day after his immunizations. Which I must add I feel was the direct cause being that he was completly heathly before that. Well good luck to you and thanks again for giving us hope. Andrea |
| Date | 2007-08-22 |
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| Message | Dear Michael.... Your success is encouraging. I have a 9 month old granddaughter, Claire, who was diagnosed in March of this year. The oral steroids did not help. My son and his wife have been having a very hard time with this as is the rest of the family. Right now Claire in is a trial drug program. We hope this works. All the other medications have failed.....Please say a prayer for Claire. Good luck to you Sue McDaniel |
| Date | 2007-07-07 |
| Location |  |
| Message | Hello Visitor I hope you find my site interesting. My life has not only proven interesting to me, but also proved odds can be beaten. For here I am today, alive, well and as 100% healthy as most people can be. Please do leave a message either here for me or my mother. Alternatively, feel free to eMail us directly. We will attempt to answer any question(s) you may have. Lots of love and hope. Michael |