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NameXRumerTest
Date2015-02-16
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MessageHello. And Bye.


NameXRumerTest
Date2015-02-15
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MessageHello. And Bye.


NameChris Hannah
Date2013-10-09
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MessageLove your blog and videos, my cluster headache friend. Awareness is key to finding better treatments, support and understanding, and increased funding for research to find the cause of this debilitating illness. I applaud your efforts to get the word out!

-Chris Hannah
President, CHSG.ORG


NameGordon Anderson
Date2013-06-21
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MessageKeep strong brothers and sisters. I am one too, for over 30 years now. Nobody and I mean nobody can ever begin to understand the level of pain and the mental challenge of dealing with it, time and time again. Have any of you ever considered that perhaps this makes us as a group, the strongest of people. If we gave anyone else a 5 minute peak cluster experience it would tear them apart and change their perception of life. We have learned, we have fought in the dark silence, alone, but we keep the faith.

God Bless all of you. Gordon Anderson


NameMichal Pitman
Date2013-03-10
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MessageI too suffer from Cluster Headaches. I recently (last week) under went 18 infusion treatments of DHE to try and make my headache easier to live with.


NameColin
Date2012-05-26
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MessageHi there is nothing worse than having to live with clusters and you can get all caught up in it all and forget that anything else exists, that was a great read and i hope you do one day start to write your blog again

Thanks Colin (a fellow cluster headache sufferer) smilie ← me when I have a headache lol


NameDee
Date2012-04-27
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MessageHi, Well its nice to see that Im not as much of a freak of nature as I thought! I too suffer from Cluster headaches and as my neurologist was deciding on how to treat me discovered my simple partial and complex partial seizures. He then gave me a prognosis of Epilepsy and said that he had to observe me longer in order to give a definitive diagnosis. So far the Clusters come on every time the seasons change, so everyone at work thinks Im just making things up and now that my seizures are pretty much under control they think that was all in my imagination. It has been rough and being military has made it worse. Im glad I found your blog. It made me feel better about these two diseases and also made me feel like I wasnt loosing my mind. Thanks smilie


NameKarly Tanner
Date2012-01-17
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MessageHello,
Was reading your blog. So incredibly sorry you have to live with this condition. I have been researching it. I just wanted to tell you I wanted a really great documentary on National Geograpic and they did a segment on a man who has cluster headaches, and he found relief by doing mushrooms(the magic kind) once every 2 months, and it gave him complete relief for the 2 months. I really hope things get better for you. Cant imagine having to live with Cluster headaches. Best of luck.


Nameleslie
Date2011-09-03
MessageI recently became aware of the severity and frequency of migraine sufferers when seeing info on it on shows like cbs news and The Journal with Joan Lunden, and then it hit home with a close friend. Keep up the fight and posting the info.


NameJon S.
Date2011-07-13
MessageThe 2nd video was me before my doctor gave me Imitrex injections. I don't go anywhere without them and I highly suggest them for anyone who suffers from this debilitating condition! The headache goes away within 7 minutes.


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