Welcome to the MSRC Guestbook.
We would welcome your comments about the site and the services of MSRC in general.
Completing the location part of the guestbook will also enable us to see just how many countries MSRC is reaching.
Thank you for your time.
|Message|| I just wanted your posters and bloggers that i have stayed with tysabri for 5 years now. i have had ms since 94, 18 years? wow. that was fast!! |
I was d/x in 1994, and received only prednisone that year, (thru fall 1994 to spring 95).
i started betaseron during my second flarup in spring 95, took it for 8 years later when i 'ran out of skin to inject'. i discontinued it on my own, as i started to have an aversion to needles, and was having injection site issues, in late 2004 to early 2005.
Started Avonex in fall 2005, stopped it fall 2006. I don't think it did me much good after having 2 excaserbations that year, which meant i started tysabri while having a knock down drag out, flareup, which was cleared in 2 weeks after my first tysabri infusion.
i started tysabri in feb 2007, 5 years, 65 (yes, sixty five )infusions ago. i do not have the jvc 'gene'. number 66 is this week. I've seen posts where some say tys is only for 2 years, but here i am, 5 years later, exaserbation free.
i am hoping this info will help ease the fear surrounding Tysabri. I have barely any side effects now and judging from flareups, tyasabri 5years +, zero flareups, betaseron 8 yrs, occasional flareups, mildler than before i started, avonex, 1 year, 2 knockdown dragout flares.
if you have something specific you are worried about,please email, maybe we share symptoms or timeline or side effects.
From rural Canada,
|Message||I am 39 yrs old I was just diagnosed with multiple sclerosis in september 2012.|
I Find reading your page helpful.
|Message||I have Progressive MS and i just want to take a pill and not a needle so i always check for information on Progressive MS just wanting to walk again, just wishing. Thank You|
|Message||I did the link to the way MS feels in movement, hearing, vision, etc. That link is most important. I have been diagnosed with MS for 3 years and feeling pretty good about things. I hope my co workers can "take the test" and understand me better.|
|Message||I was so pleased to find your site. My life is about to radically change. For the first time I am going to be alone. MS has been my companion for many years. I don't even know how to get started with building a new support system. I found you quite by accident. Do you have any suggestions to help me on my journey?|
|Message||love jokes and funny pictures as I'm disillusioned waiting for treatment for my kind of m.s.|
|Message||I have trawled the web looking at ms sites and I must say this has been the most informative yet.|
Showing personal experiences of those with ms alongside the symptoms gives the reader more insight in to the condition.
Thank you and keep up the good work
|Message||Hello! I was diagnosed with MS a little over a year ago. I conduct internet research from time to time to see what's new for MS. I just found your site last night. I must say - I love it! It's very easy to navigate and offers much informative and interesting information! Thank you!|
|Message||Site is the best I have come across. I have a lot of symptoms associated with MS, including thin mylelin revealed by MRI. Chronic fatigue, dizziness, numbness in limbs and extremeties, heat intolerance, problems with short term memory. I have not yet been diagnosed and am very very anxious to know whether or not I have MS. I have had episodes of symptoms above plus vision problems at least twice over the past ten years.|
|Message||I just found your site today. I am 61 years old and have had MS for 37 years. I am secondary progressive. I have been reading the posts on Tysabri and have found them very helpful and encouraging. My doctor has been encouraging me to take it but I have been reluctant. Thannk you for your website|
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